Other Types of Dystonia

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Many people understand what spasmodic torticollis is, but do you know or understand what most of the other dystonia’s are?

We’d like to do a brief overview of Dystonia.  I was always in the dark as to what dystonia was and all the various types that there are and, so for the newly diagnosed or even anyone else, this may help you to better understand what really exists.

Dystonia itself means abnormal muscle tone.  Our muscles don’t function the way normal ones should…and why is that?  That’s really the big question and the one that there is no answer for.  It, as the medical books say, is idiopathic in origin – of unknown cause. Suspicion is that there is a chemical disturbance in the brain that causes the various muscles to behave the way they do.  Why a muscle in the neck is targeted vs one in the eyes is hard to understand.

I like to explain that Dystonia is a family name the same as Smith or Hones and that within this family there are many different names such as Joe or Bill or Emma, etc.  Starting from the top of the head you would find:

This is intended to be just a general overall description of the various prominent dystonia’s.  There are others but I just wanted to list the major ones.  I would be remiss if I didn’t mention that with all of these various dystonia’s extreme pain and embarrassment can be present.

I've found your web site the most helpful of them all. The way it's written really has helped me. Kristi, New Zealand