New News

The Importance of Member Participation

Have you been helped by someone’s personal experience that you read in one of our news magazines? Wouldn’t it be great to share your own to pass on information that can help someone else? Executive Director Howard Thiel explains why participation from our members is so important to the livelihood of ST Dystonia. Click here to read his article.


10 Reasons to Join Us

How Does Joining Us Make ST’rs Stronger?

Check out our 10 Reasons to join ST Dystonia. You may be surprised at how being part of an organization truly helps you and your fellow ST’rs. A strong association will push and engage pharmaceutical firms to develop treatment programs which will help YOU, the person with dystonia.

What is Spasmodic?

Spasmodic Torticollis (Cervical Dystonia) is a neurological disorder affecting the muscles of the neck which cause the head to be pulled either sideways, downwards or backwards. Pain is frequent and severe. Click here for more info.


Our Philosophy. You are not alone!

There are plenty of ST’rs out there who need help. ST Dystonia was founded on the premise to be there for our members…like one big family. We’re about the positive and want to mix this site up with education, fun, humor, treatments, trivia and whatever comes to our/your mind. We’re wide open to listening and please remember, YOU ARE NOT ALONE. Find out more here.

Testimonials

THANK YOU…THANK YOU…THANK YOU FOR ALL YOU DO THAT’S BETTER THAN BEST. B. Paradeze

My mom and I wanted to thank you for hosting such a great symposium this year. This was our third year and we are looking forward to next years. Eva Mathews

I’ve found your web site the most helpful of them all. The way it’s written really has helped me. Kristi, New Zealand

I got the magazine today, some really good articles in it. S Caruso

YOU ARE NOT ALONE sounded so cliche, but once at the symposium it felt great. S. Foote

Thank you for all you do. I find the magazine to be so supportive and interesting that I read it from cover to cover as soon as I receive it. B. Thompson

I am very thankful for this organization and for Abbie’s clinic. I can only imagine where I would be without them. Probably lost in a benzo induced fog of despair. So what you are doing really has made a difference. A. Tripp