Living with ST

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Finding Your Road to Happiness!

Many of us have difficulty explaining ST to others. How do we explain it? How do we explain pain? How do we explain the power of pain? How do we explain the pressure in our heads or the burning sensations? How can we look OK one minute and then twisted up the next? Many of us have been accused of “faking it”. We’re certainly not doing that!

Living your life

How are you living your life now that you have Spasmodic Torticollis? Has it, literally, stopped you? Put you on hold?

It doesn’t have to. You may think you won’t be able to do all those “fun” things you used to do, and, while this might happen, it isn’t necessarily true. Certainly, there will be some things you may not be able to do, or do to the degree that you used to, but there are still many things, many other things you still can do.

Think of three things you like to do that make you the happiest. Are you physically able to do them? If not, what are three things that you can do that can make you happy? Write them down on a separate sheet of paper. Now, think about the last time you did each one of them. Was it a week ago? Month ago? Year ago? Beneath each favorite thing, put how long it’s been since you’ve done it. What does this information tell you about how you’re living your life? Did you have trouble thinking of even one favorite thing? Are you doing the things you like to do in your life?

You cannot control the external circumstances of your life, but you can control your reactions to them.

Things change.

People change. Our lives change. The only thing permanent in life is change. Your life with ST has changed you but it’s not over. It’s only beginning. It’s the dawn of a new era. It’s the first day of the rest of your life. After the acceptance of ST, which is your most important first step, you will have other options leading you down the path towards overcoming ST. Your life definitely will be different with ST. Always remember though, that you will still be able to live a full life albeit in a different fashion.

Finally, from all of us at ST/Dystonia, GOOD LUCK.

Remember… You can have that better life and you don’t have to feel alone anymore!

I've found your web site the most helpful of them all. The way it's written really has helped me. Kristi, New Zealand