Your Journey of Hope

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Welcome to ST/Dystonia’s new and innovative “TREATMENT CENTER” which features the various treatment methods, medical and non-medical, available for you.

Which treatment is for you? Will it be more than just one? Will it incorporate some non-medical methods? In fact, we would recommend you adopt a multi-disciplinary approach; possibly taking botox/myobloc but also learning relaxation techniques and doing yoga. That’s a huge question you will face and we hope this new “TREATMENT CENTER” will make it much easier for you.

But, before you click on any of the aspects of the treatment methods, and especially if you’re just diagnosed or don’t really understand all the ramifications of ST, please allow yourself a couple of minutes to read the following to help guide you in your JOURNEY OF HOPE.

Dystonia, basically means, “abnormal muscle tone”. It is a family name much as Smith or Jones is and, within the family of dystonia, are many different types. We’ll outline very briefly the major ones starting from the top of the head and going down:

Blepharospasm – of the eyes
Meige Syndrome – of the face
Oromandibular – of the mouth
Dysphonia – of the larynx
Spasmodic Torticollis – of the neck
Torsion – of the whole body

Spasmodic Torticollis has the largest population of dystonics; in fact, in an ongoing prevalence study which should be completed by 2007, it has been estimated that there could be as many as 1,000,000 or more of people having ST. And then there are all the other dystonias. That’s a huge jump from the much older studies.

My mom and I wanted to thank you for hosting such a great symposium this year. This was our third year and we are looking forward to next years. E. Mathews