Contacts:

Howard Thiel
Executive Director, ST/Dystonia, Inc.
262.560.9534
howardthiel@sbcglobal.net

 

Dear Reporters, Producers and Editors:

This electronic media kit is designed to provide you with pertinent background information about Spasmodic Torticollis (ST). It is also designed to be a starting point to assist you with story assignments that concern this often-overlooked neurological disorder.

Included here for your use are:

• News Releases concerning the latest developments on ST
  
• ST Frequently Asked Questions
  
• ST Profiles – Brief sketches of real-life ST patients who are available for news interviews, complete with some suggested starter interview questions

In addition, we have a number of other ST patients around the country who are willing to share their stories to educate your readers, viewers and listeners while, at the same time, reaching out to other people who have ST and don’t know what their medical problem is. If you are interested in developing a story and would like help with a local angle, we will gladly assist you.

We welcome the opportunity to work with you on any story ideas you might have and will make every effort to set up the interviews and visual opportunities necessary for telling your story in the most timely and efficient manner. Please think of us as a valuable resource on stories pertaining to ST and do not hesitate to call or email us if we can assist you in any way.

We thank you for your consideration and look forward to working with you!