A Better Future...

Spasmodic Torticollis is regularly misdiagnosed. With each new member we take a step toward being taken more seriously.

What Is ST?

Brain Bank Research and Treatment

The Gift

NICHD Brain and Tissue Bank for Developmental Disorders
655 West Baltimore Street,
BRB 13-013, Baltimore, MD 21201

The NICHD Brain and Tissue Bank for Developmental Disorder at the University of Maryland in Baltimore is a tissue resource center established by the National Institute of Child Health and Human Development to further research aimed at improving the understanding, care and treatment of developmental disorders.

The NICHD Brain and Tissue Bank serves as an intermediary between the research community and people who wish to donate tissue for research upon the time of their death. The Bank safely stores the tissue until qualified researchers request the tissue for research which has been approved by their Institutional Review Board. Both people with developmental disorders and people free of disorders are encouraged to register and donate tissue. Often times it is the comparison of the unaffected with the affected which unlocks the medical mystery of a disorder.

Spasmodic Torticollis is a debilitating neurological movement disorder which is believed to be caused by a dysfunction of the brain.

Already medical researchers have requested brain tissue from our Bank to study this disorder, but the availability of this tissue is especially limited.

As more tissue becomes available and more researchers dedicate their life's work to this disorder, new discoveries can lead to new treatments, and perhaps, one day, to a cure. It is only through the study of donated tissue that important answers will be found.

If you are interested in becoming a registered donor, or if you have any questions or concerns regarding the donation process, please contact Anthony Weldon, Project Coordinator, at 800-847-1539 during normal business hours (9AM-5PM EST Monday through Friday). Anthony can be reached anytime for an emergency. Thank you for taking the time to consider tissue donation. (Please visit our website at www.btbfamily.org).