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ST Dystonia
ST Dystonia
ST Dystonia

New News

The Importance of Member Participation

Have you been helped by someone’s personal experience that you read in one of our newsmagazines? Wouldn’t it be great to share your own to pass on information that can help someone else? Executive Director Howard Thiel explains why participation from our members is so important to the livelihood of ST Dystonia. Click here to read his article.

2017 April MagazineOur April 2017 Newsmagazine Is Out

The patient experience through a doctor’s eyes, neuroplasticity, finding balance, diagnosis treatment, fellow ST’rs personal accounts and much more are interesting topics you’ll be able to read about in this quarter’s edition of ST Dystonia’s newsmagazine. If you’d like to join to receive these great articles click here.

icon-redvest2016Red Vest Golf Outing…Save the Date!!!

Due to the US Open being in town we changed the date of our tournament to June 24, 2017. Also, this year, we’re auctioning off some great items including one of Hank Aaron’s bats from when he hit his record breaking 755 home run in Milwaukee, WI. Click here to learn more!

Dystonia Rehabilitation Through Neuroplasticity Training (part 1)

Check out the first part of this series from Dr. Hogan highlighting some of the key elements from the program presented by Dr. Farias at our Chattanooga symposium and from his e-book…”Limitless”. Click here to read her article.

I Used to Read Stories of Hope on the ST Website

Read about how Shannon was led to a variety of treatments that changed her world for the better starting with daily reads on stdystonia.org, finding Abby’s program and hearing about neuroplasticity from a friend. It’s a very well-rounded article that could help different people with different needs. Click here to read her article.

Neuroplasticity with Dr. Joachim Farias

Martine’s husband explains how dystonia has altered the trajectory of her life and how she now spends most of her waking hours dealing with and trying to lessen the effects of cervical dystonia. If you’ve suffered through ST at all you may be able to relate. Click here to read her article.

icon-auberleThe Patient Experience

An article with a unique, interesting twist! Dr. Auberle shares some opinions on healthcare from a medical practitioner’s perspective. You’ll find this very interesting as it could effect you. Click here to learn more about what’s to come.

Rhode Island 2017 SymposiumHey Rhode Island…Are You Ready for Us?

ST Dystonia’s 2017 symposium is sure to deliver on great tours, incredible educational speakers, awesome dinners, dancing and fun! We can’t wait to see you there. Click here for a preview of what’s to come.


Events

Rhode Island 2017 SymposiumHey Rhode Island…Are You Ready for Us?

ST Dystonia’s 2017 symposium is sure to deliver on great tours, incredible educational speakers, awesome dinners, dancing and fun! We can’t wait to see you there. Click here for a preview of what’s to come.

icon-redvest2016Red Vest Golf Outing…Save the Date!!!

Due to the US Open being in town we changed the date of our tournament to June 24, 2017. Also, this year, we’re auctioning off some great items including one of Hank Aaron’s bats from when he hit his record breaking 755 home run in Milwaukee, WI. Click here to learn more!


10 Reasons to Join ST Dystonia

icon-10reasons How Does Joining ST Dystonia Make ST’rs Stronger?

Check out our 10 Reasons to join ST Dystonia. You may be surprised at how being part of an organization truly helps you and your fellow ST’rs. A strong association will push and engage pharmaceutical firms to develop treatment programs which will help YOU, the person with dystonia. Click here to learn more.


What Is Spasmodic Torticollis?

Spasmodic Torticollis (Cervical Dystonia) is a neurological disorder affecting the muscles of the neck which cause the head to be pulled either sideways, downwards or backwards. Pain is frequent and severe. Click here for more information.

Our Philosophy...You Are Not Alone!

There are plenty of ST’rs out there who need help. ST Dystonia was founded on the premise to be there for our members…like one big family. We’re about the positive and want to mix this site up with education, fun, humor, treatments, trivia and whatever comes to our/your mind. We’re wide open to listening and please remember, YOU ARE NOT ALONE. Click here to read about our early days.

Testimonials

THANK YOU…THANK YOU…THANK YOU FOR ALL YOU DO THAT’S BETTER THAN BEST. B. Paradeze

My mom and I wanted to thank you for hosting such a great symposium this year. This was our third year and we are looking forward to next years. Eva Mathews

I’ve found your web site the most helpful of them all. The way it’s written really has helped me. Kristi, New Zealand

I got the magazine today, some really good articles in it. S Caruso

YOU ARE NOT ALONE sounded so cliche, but once at the symposium it felt great. S. Foote

Thank you for all you do. I find the magazine to be so supportive and interesting that I read it from cover to cover as soon as I receive it. B. Thompson

I am very thankful for this organization and for Abbie’s clinic. I can only imagine where I would be without them. Probably lost in a benzo induced fog of despair. So what you are doing really has made a difference. A. Tripp

Click here for more!